Purplification is a fun way Miles for Migraine is turning themselves purple for fundraising, awareness, unity, and FUN!

Scared to tell your boss when you’re having migraine attacks? Or trying to retain your employees and reduce sick days? As more people return to working in person, explore adjustments that optimize the environment for people with this painful neurological health condition. Migraine disease is the second leading cause of disability in the workplace.

Today is the first day of Migraine and Headache Awareness Month. We kick off #MHAM by recognizing Migraine at Work Day to raise awareness for the need for employer accommodations for people living and working with migraine disease and headache disorders. Annually, more than 157 million workdays are lost in the United States. Decreased productivity and health care costs $37 billion yearly. Learn more about how to build a migraine-friendly workplace from Migraine at Work: migraineatwork.org

The U.S. Department of Veterans Affairs reports that veterans are more likely to develop migraine and headache diseases. Many researchers believe this occurs as a result of their service in the military. New data show that 350,000 Global War on Terror (GWOT) veterans sustained traumatic brain injuries (TBI). Nearly half of GWOT veterans with deployment-related TBI, reported headaches 15 or more days per month and 89% met criteria for migraine. Three million GWOT veterans were exposed to toxic open burn pits. Compared to veterans deployed but not exposed to burn pits, veterans deployed and with burn pit duties, years later reported nearly twice the risk of functional limitations due to migraine. We are committed to advocating for the veterans who have served us.

During #MHAM, we honor those we’ve lost to migraine/headache disease. Please light a candle or light your home with a purple light on June 7 at 6pm EST in remembrance. Then take a picture and share it on social media with #ShineALight.

On June 15th, Shades for Migraine is holding a beach celebration to raise awareness for migraine to make the biggest noise for June 21!

Where: Second Beach Middletown/Newport RI

When: 10:00 a.m. – 2:00 p.m. on Wednesday, June 15th. We will be wearing purple sunglasses under a big purple tent, you won’t miss us!

What to bring: Upbeat energy and your friends and family! We will provide you with official SFM purple shades and informational handouts. Please also bring anything you normally would to a beach, i.e. sunscreen, towel, beach chair, etc. Snacks and water will be available but you are welcome to bring your own food as well.

What to expect: There is power in numbers. We want to have a big group there to show support for people with migraine. Attendees will be asked to start conversations with people on the beach, take pictures and hand out informational cards and sunglasses. If you aren’t interested in talking to others or handing out cards and sunglasses, we still want to see you there! By just being there, you are helping take a stand against migraine!

This event will feature photo stations, yard games and giveaways. It’s also an opportunity to connect with other people in your area who have migraine. You won’t want to miss it!

RAIN DATE – June 17

This event is FREE. However, the beach does charge for parking. AMD/SFM is unable to cover this fee.

Raise awareness about migraine, cluster and other headache disorders TODAY by sharing a photo, poem, original art or piece of music on social media which shows the real face of headache disorders. Please use these hashtags with your posts:

#sharethepainbehindthesmile
#migrainebehindthemask
#mham2022

On June 16th, Shades for Migraine is taking it to the streets of Boston to educate the public and raise awareness about migraine.

Where: This is a walk around Boston that will start at Quincy Market

9:30-10:30 a.m. – Quincy Market

10:30 – 11:30 a.m. – Walk from Quincy Market to Boston Common/Public Gardens (.5 mile walk, will stay at Boston Common for a period of time)

11:30 – 1:30 p.m. – Train from Boston Common/Public Gardens to Fenway Park AMD will pay for volunteers’ train tickets.

It is completely optional to join us for the various stops on this tour. If you do not want to walk, you are more than welcome to come to just the Quincy Market portion of this event.

When: 9:30 a.m. – 1:30 p.m. on Thursday, June 16th. We will be wearing purple sunglasses and t-shirts, you won’t miss us!

What to bring: Upbeat energy and your friends and family! We will provide you with official SFM purple shades and informational handouts. Please bring snacks and water for yourself.

What to expect: There is power in numbers. We want to have a big group there to show support for people with migraine. Attendees will be asked to start conversations with people on the beach, take pictures and hand out informational cards and sunglasses. If you aren’t interested in talking to others or handing out cards and sunglasses, we still want to see you there! By just being there, you are helping take a stand against migraine!

If severe weather occurs, this event may be moved to later in the day, another day or canceled.

This event is FREE. However, there may be a fee for parking. AMD/SFM is unable to cover any parking fees.

Date
LIVE: June 18, 2022
8:30 AM EST
VIRTUAL: June 16-20, 2022

Distance
2 Mile Walk / 5K Run / Relax

Beneficiary
DENT Neurologic Institute

On June 18th, Shades for Migraine is taking on Central Park in New York City to educate the public and raise awareness about migraine.

Where: The Great Lawn in Central Park – Keep an eye out for a group of people wearing purple sunglasses and t-shirts!

When: 11 a.m. – 2 p.m. on Saturday, June 18th.

What to bring: Upbeat energy and your friends and family! We will provide you with official SFM purple shades and informational handouts. Please feel free to bring lawn chairs!

What to expect: There is power in numbers. We want to have a big group there to show support for people with migraine. Attendees will be asked to start conversations with people on the beach, take pictures and hand out informational cards and sunglasses. If you aren’t interested in talking to others or handing out cards and sunglasses, we still want to see you there! By just being there, you are helping take a stand against migraine!

If severe weather occurs, this event may be moved to later in the day, another day or canceled.

This event is FREE.

We call on all people living with headache diseases to join us in fighting systemic racism and unconscious biases to eliminate health disparities. African Americans bear the brunt of existing healthcare challenges, especially when related to headache diseases. CHAMP and DiHAC (Disparities in Headache Advisory Council) seek to advance this conversation on Juneteenth (short for “June Nineteenth”), a holiday that commemorates the effective end of slavery in the United States.

Today we’re acknowledging the millions of men who are living with headache disease. Headache is gender blind. The pain is real for men too. If you are a man living with the symptoms of headache, migraine or cluster take the steps to get an accurate diagnosis. You deserve treatment and relief.

Join us at this webinar with Migraine Meanderings and HMPF where we’ll be discussing the results of our recent patient survey: Migraine in the ER and Urgent Care. Learn about patient experience, access challenges to treatment, and be a part of the discussion on how to improve this aspect of migraine treatment. Come with your live questions!

June 22 at 1pm ET (12pm CT, 11am MT, 10am PT)

This will be a virtual walk, run or relax event that you complete from your home town at a time that works best for you between June 23-30, 2022.

All funds raised will benefit the Alliance for Headache Disorders Advocacy (AHDA) to support their annual Headache on the Hill event. Headache on the Hill is AHDA’s advocacy event where patient, provider and caregiver advocates from all over the country come together to advocate for equitable federal policies for those with headache disorders. This year marked the 15th Annual Headache on the Hill, where over 200 advocates representing 48 states met with 50% of all Congressional offices. With your support, Headache on the Hill will continue to grow and make an even greater impact on the lives of the millions living with headache disorders in our country!

The 7th Annual #CureForCluster Virtual 5k Run/Walk is an event to support cluster headache awareness and raise funding for cluster headache research. Anyone in the world can participate by signing up on the Race Website.

The #CureforCluster 5k began in 2016 as an in-person event in Denver, Colorado, and has since become a virtual event, so “clusterheads” worldwide can join in. You can run or walk in the comfort of your own home if you have a treadmill, around your neighborhood, or a local park.

Always follow precautions advised for your health needs and be respectful of others around you. We encourage you to use this opportunity to get your friends and family involved for support if you are able to safely participate outdoors.

Runners and walkers are encouraged to photograph themselves in their #CureforCluster t-shirt and post on social media using the hashtag. The goal is to flood our accounts with images of clusterheads and their supporters. If you’re unable to participate due to health or time constraints, we encourage you to donate on behalf of a participant or directly to research.

All proceeds from the event go to cluster headache research through Clusterbusters, Inc, a non-profit organization founded in 2002 to promote research, education, and awareness of the condition.

Chronic Migraine Awareness would like to invite you to its Ten-Year Celebration! Celebrate Chronic Migraine Awareness Day and spread the facts of chronic migraine disease. Event includes local vendors, food trucks, special guest speakers and features The School of Rock! Come with your purple flare and celebrate this milestone! #RallyAgainstChronicMigraine

CMA Day — #RallyAgainstChronicMigraine today! Raise awareness and stop chronic migraine stigma wherever you are — your bed, at the doctor’s office, in a meeting, with your family. Tell the world how you rally to fight chronic migraine! chronicmigraineawareness.org/rally

#CMAware #migraine #ChronicMigraine #MHAM2022 #CMADAY2022