Bringing Visibility to an Invisible Illness

invisible illness

From a young age, we learn not to judge a book by its cover, yet inherently it’s something most of us do (even if we don’t realize it). For people with migraine, our “covers” rarely reflect what’s happening on the inside. Dark circles, somber expressions and exhausted bodies often are misinterpreted for a bad night’s…

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Fathers With Migraine

migraine in men

Often thought of as a woman’s disease, migraine impacts more than 300 million men worldwide. Many are fathers. Too many struggle undiagnosed and without support. This is in honor of all fathers with migraine on Father’s Day. A Personal Experience I am a father with migraine. My own father luckily didn’t have the issue, although…

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Disparities in Migraine: Deborah Y. Turk’s Experience

disparities in migraine

I have been living with migraine disease for more than 25 years. My disease went from episodic migraine to my current diagnosis of intractable chronic migraine. I had one young child when my migraine attacks began, and I now have three adult children and a grandchild. I went from working two jobs at the time…

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Why It’s Important for Caregivers to Show Their Support

caregiver

Three Ways I Show My Support as a Caregiver My son, Nate, was 10 years old when I was initiated into the complicated world of migraine disease. He collapsed on a baseball field in the middle of an inning — vomiting, weak and unable to speak or open his eyes. He was diagnosed the following…

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Volunteering Led To A New Career

volunteering

Migraine doesn’t define me, but it’s had a larger than desired impact on my life. More than once in my career, I thought work was the problem. After 15 years with one employer, I changed to a new company. Migraine followed me down the road to the next office. After several years of increasing migraine…

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My Decision to Start a New Migraine Treatment

Dawn of a New Era  for Migraine Treatment Options In 2018, the dawn of a new era of care for migraine disease brought with it a newfound hope that words cannot easily describe. For decades I had lived with high frequency episodic migraine and struggled with an endless trail of medications that were either inappropriate,…

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Effective Communication with Your Headache Doctor

headache doctor

Honest and thorough communication with your doctor is necessary to ensure you’re getting the right treatment. The better you are at communicating with your headache doctor, the more you will be able to get out of the relationship and the better care you will receive. Tips to keep the lines of communication open with your…

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Volunteering Renewed the Spark Inside Me

volunteering

Looking back at my life, I’ve always loved to help people. Growing up, I was a lifeguard. Parents entrusted me with their children’s lives while swimming in a crowed pool. Right out of college, I worked for a bank. I helped people save for their first car, first home, their child’s first savings account, then…

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Navigating the World as a Queer Black Migraine Patient

migraine patient

You’re always told, “If you’re not feeling good, go to the doctor; they’ll take care of you.” For many marginalized groups, that’s so far from the truth. How My Experience Started From a very young age, I was introduced to the harsh realities of the U.S. healthcare system and how they treat young, LGBTQIA+ and…

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Connecting to Migraine Communities

migraine communities

What was your world like prior to March 2020? Were you working outside of your home? Getting together with friends and family? Going to sporting events, concerts, parties? Enjoying a meal out with friends/family? Going on vacations? Business trips?  Walking around an amusement park? Maybe just walking around the mall? Some of us were going…

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