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See How YOU Made a Difference in Our Community! MHAM 2020 Community Insights
On behalf of CHAMP’s NMHAM committee, we would like to thank all of the participants and participating organizations in National Migraine and Headache Awareness Month 2020! As a community, we attended virtual races and education events, we read blog posts, we wrote about our personal migraine and headache stories, we rallied, wore purple and wore…
Read MoreTips for Becoming a Migraine/Headache Advocate
As Migraine and Headache Awareness Month ends, you might be inspired to become an advocate yourself. Excellent! CHAMP and its member organizations have great suggestions for specific things you can do to advocate for migraine patients. But how do you know where to begin? What if you’re not a clinician or scientist? Why would someone…
Read MoreWhat is Chronic Migraine Awareness Day and Why Does it Matter?
Every June during National Migraine and Headache Awareness Month, Chronic Migraine Awareness, Inc. (CMA, Inc.) works hard to spread awareness and education for the four million people living with chronic migraine. Chronic migraine disease is not just a headache, it’s not all in our heads, it affects every aspect of our lives. It means having…
Read MoreAdvocacy Spotlight: Alicia Wolf
Alicia Wolf was sitting in the driver’s seat of her parked car filled with a bunch of her co-workers when she felt like she was being propelled forward. It was that moment that solidified that, in addition to the months of dizziness she had been experiencing, that she needed medical intervention. She saw seven or…
Read MoreI Am Not Alone: What I’ve Learned About Others Living with This Disease
Happy National Migraine and Headache Awareness Month. The phrase “I am not alone” is used quite a bit in the migraine and headache communities. When I was first diagnosed with migraine disease, I did think I was somewhat alone. I didn’t think I knew anyone else who had migraine until I needed a family history.…
Read MoreHow Retreat Migraine Changed My Life
Living with Migraine can feel really lonely, but advocacy brings us together. This article shares how I found community at Retreat Migraine and how to get started as an advocate.
Read MorePutting our Heads Together During Quarantine
Migraine is hard on a relationship and a family during normal times. Throw in the unique and ever-changing realities of a global pandemic, and it makes the situation extra challenging. But it also has given me insights into my wife’s world that I would not have otherwise learned, and that might be helpful to other…
Read MoreFive Reasons to Stay Hopeful
After 18 years of living chronic migraine, numerous hours in doctors’ offices and countless failed therapies, some may wonder how hope could ever be a part of my vocabulary now. To be honest, the younger version of myself would ask me the same question. For my younger self, hope was synonymous with my dreams. I…
Read MoreI Have Found my Community Through Migraine
I have had migraine disease since the age of 12 but did not receive a diagnosis until adulthood. My migraines remained episodic until July 2016, when I became chronic intractable. I had been ignorant about what migraine disease could be, never in my wildest dreams did I believe you could have a migraine that never…
Read MoreAdvocate Spotlight Interview: Anna Williams
One of the most awesome things as a migraine patient advocate is watching others discover their voice in the midst of the community. The realization that even in the midst of life with migraine there is purpose and value can be transformative. Walking through that journey with someone is inspiring! For the past year, I’ve…
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