Sharing a Story of a Loved One Lost to Migraine: Danielle Byron Henry

“It was Danielle who taught me that pain can be as malignant as any cancer. More importantly, pain can metastasize, eating away the soul, and obliterating hope and the will to live.”

-Lynn Webster, M.D., family friend

 On March 24, 1999, at age 17, Danielle Byron Henry took her own life. She had lived with chronic migraine for seven years and suffered an ischaemic stroke as a result.

“When she felt well, Danielle was magic. She was the sunshine in our family,” says older sister Elizabeth. Her father Dr. Dan Henry, a family physician, now focuses on those with debilitating migraine and headache diseases. “I never want another patient to hear, ‘I have nothing to offer you.’”

In 2016, her family started the Danielle Byron Henry Migraine Foundation, which aims to reduce stigma. They have partnered with the University of Utah to start “Headache School.”  Diane, Danielle’s mother, affirms “Danielle’s life was meant to bring us to this journey…to Shine Her Light.”

Danielle’s story was originally published in the INvisible Project: Migraine & Headache 3rd Edition.


Michaela O’Connor


by Michaela O’Connor
Community Outreach and Communications Specialist,
U.S. Pain Foundation

Read More Posts

Tips for Becoming a Migraine/Headache Advocate

As Migraine and Headache Awareness Month ends, you might be inspired to become an advocate yourself. Excellent! CHAMP and its member organizations…

Read More
Two open hands holding a yellow flower.

Advocate Spotlight Interview: Anna Williams

One of the most awesome things as a migraine patient advocate is watching others discover their voice in the midst of the…

Read More
Original group of MHAM committee members

The History of National Headache and Migraine Awareness Month

As we celebrate the 50th anniversary of the founding of the National Headache Foundation, we are also noting that efforts to elevate…

Read More